Room With a View, Please!

Some of you may have noticed on Facebook the other day when one of my best friends mentioned "Lord, give us a room with a view."  This is our prayer! I don't dream about getting him home just yet. If I've learned anything, its that this road is long, bumpy, full of steep hills and full of baby steps.  Of course its my goal to get him in his room in our house and I can't wait, but the next step is a room with a view.  I LOVE downtown Birmingham and the skyline, but that isn't why Im desperate to see out.  The NICU here has special rooms that CDH babies are admitted to in case they were to need the ECMO circuits.  They are shaped differently so that all the equipment will fit.  Due to their need for minimal stimulation, they also have no windows.  The room stays dark and quiet and can suck the life out of you.  It feels MUCH better with the ECMO circuit gone though.  When Dade had his circuit, he also had two nurses in here at all times, an ECMO specialist and an RN to tend to his needs.  Now, we are down to one nurse and we have added a recliner so now DJ and I sit here together, comfortably.  We look like two old folks cuddled up watching tv, accept for we are watching Dade and all of his monitors.

Before the rooms were full on this unit, I would walk into an empty room, with a view, and pray for God to just get us to one of those rooms.  To me, THAT is progress.  It means that we are off of ECMO, the machine is history, and that our son is making strides to get out of these rooms and into a different type of room...with a view! Let that be your prayer with us, please.